Lobbying and accomplishments

Palliative / supportive care

Palliative care is, in our society, mostly aimed at terminally ill patients who are in the final phase of their life. Yet patients with chronic conditions like ALS or other incurable neurological disorders, and those who have exhausted all treatment options, are eligible for palliative care. They have similar needs as terminal patients, but for them the route to palliative care is far less self-evident. That is why we, the ALS Ligue, advocate the expansion of palliative care with a supportive type of care focused at relieving symptoms and paying attention to the social and mental needs of the patients. Supportive care improves the quality of life and ensures that patients need to be hospitalized less frequently. Attention is also paid to informal care as well as to the home environment. Supportive care plays a major role in enabling a dignified end of life, a human solution for an unsolvable problem.
Read the full document here (Dutch):

Pleidooi voor supportieve zorg.pdf